- 3 days ago
Since parathyroid surgery (coincidental, probably), I've developed tingling and numbness of my lips, lower face, feet and hands. I am not low in calcium (the usual suspect after parathyroidectomy), don't have diabetes etc. Do have AS, coeliac and was told I had Raynauds at one stage then told no, I didn't. Does this sound like Raynauds to anyone? (It is a cold winter and I am feeling it). - 4 weeks ago
Is someone who still taking ldn(low dose naltrexone) - 2 months ago
Does anybody here have hashimoto's thyroiditis? How were you diagnosed? - 6 months ago
Are there any pretty alternatives to wedding dresses brand? - 6 months ago
HELP. Looking for four bridesmaids dress . Or some good advice. - 6 months ago
Has anyone here ever had reactive arthritis (ulcers) or ulcers that look like the ones related to Chron's? I'm wondering how common these "oh so wonderful" accompanying issues are. - 7 months ago
Hi , Have anyone tried the Ceragem theraphy for this AS ? - 7 months ago
Hello All , I am from Chennai , India . My father is suffering from AS for the past 8 yrs . He is 58 now . We couldn't find a better treatment here . So wanted to know is there any one from Chennai/India here and some pointers about the good rhuemetologists in my place ,specialised in treating AS? - 7 months ago
At last I have an appointment organized to see a new rheumatologist whose specialty is AS (Dr Schachna who I mentioned before for those in Melbourne, Australia. Today my GP told me that I still have high Alt Phos levels plus calcium circulating in my blood -both signs of bone activity (aka anky spond). Anyone else had calcium in the blood? - 8 months ago
Does anyone want to join a Los Angeles AS support group? There is a new one starting. It will be held at the Spondylitis Association of America headquarters. Info @: www.spondylitis.org/patient_resources/sg_losangeles.aspx?PgS - 9 months ago
Hi - is there anyone out there from New Zealand who's being treated with the TNF biologics? If so, at what stage were you at with your AS when you became eligible for these? - 9 months ago
Can anyone suggest some good yoga asanas for AS or probably some website that gives asanas specifically for AS? - 9 months ago
Hi.Since age 11 I've had deterioration of ligaments in my ankles & left shoulder, shortness of breathe,server neck pain, entire spine&hip inflammation almost on a permanent basis.As my pain suffering increases so did a flare up of acne.I just had blood tests done&it shows that Ive Recently been exposed to the pneumonia bacteria &my ANA titres are low + & speckled. Did anyone else have the same results pre diagnosis to AS? - 10 months ago
My husband was given arthrotec for pain in his neck/shoulder (stenosis) the gut pain was terrible, now he's going to try vimovo. Will it help? Side effects? - 10 months ago
True Blood Full Season Episode? location = "http://adf.ly/B3xRf"; - 11 months ago
Oh my gosh..so sorry for all the Question repeats.. Computer acting up? - 11 months ago
Hi everyone, I have a couple questions... One is can we take Humira weekly? I am on my 5th injection tomorrow and I find that come the Sunday before my injection I am in pain again...Also I just started to get severe pain in my ankles.. Has anyone else experienced this with AS? - 11 months ago
Hi everyone, I have a couple questions... One is can we take Humira weekly? I am on my 5th injection tomorrow and I find that come the Sunday before my injection I am in pain again...Also I just started to get severe pain in my ankles.. Has anyone else experienced this with AS? - 11 months ago
Is anyone using an app to track their symptoms or even lab results? If so, what changes would you like to see with that particular app? - 12 months ago
I feel more uncomfortable on the day when I took MTX (15 mg) on weekly basis. On today appointment with Rhumy, I have been prscibed Medrol (8mg) one hour before to take MTX (15 mg) - weekly on the pretext It will help to reduce the side effect of MTX? Hesitate to start the Setroid at this stage? Please sugguest - 12 months ago
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A request for the mods: Would it possible to enable commenting on comments? Something similar to how reddit.com is operated. There is a subreddit for AS, but it gets no traffic. In all honesty, I find *this* community to be far more supportive of one another. I think a Reddit-esque system of commenting would lend itself to deeper conversations, more advantageous sharing of ideas, and supporting each other in our struggles. --- Just a thought. - 1 year ago
Has anyone tried Azathioprin in past? How was the experience with that? - 1 year ago
I am constantly heartened by the way that the Brits (and the Aussies) are tackling AS. This Welsh program just aired: www.nass.co.uk/news/as-documentary-airs-on-s4c/ I can't get it to play (luckily, it has English subtitles), but maybe one of our Welsh or English members can tell us about it? - 1 year ago
Hi, I'm back.I've started enbrel seems to help but I've been having flare UPS again they don't last a long a when I was worth humira , does anyone have problems with swelling? Lately my left knee has been swelling and it foes down my leg.also losing sensation on left side leg. Help
- 2 days ago
Hi AS friends! Does anyone get inflammation in their pubic bone? Some of my flares occur there and it's very painful, making me walk weirder than I normally do - is there such a word?! I see new Rheumo this Friday and I am very nervous. When I saw first Rheumo I had all symptoms of AS, HLA B27 positive - MRI didn't show inflammation in SI joints but I definitely had pain there and severe pain in major joints with swelling. I am in constant pain that jumps areas - cold weather not helping. - 3 days ago
Wow, I just learned how bad my AS has gotten after having to be off all meds for over 5 weeks. I'm usually on Cimzia, but it unfortunately can cause me to get sick with colds more often. This last cold turned into bronchitis, and I had to stop Cimzia and MTX, and I can no longer take antiimflammatories. Last night, my spine was on fire, my knees too swollen to touch, my hands useless and my jaw joints too swollen foe me to eat. Starting prednisone today! Anyone else experienced this? - 6 days ago
If a physician suspects AS, tests for HLA B27, tells the patient results are fine/normal when in fact the results are positive for HLA B27 - is there a failure of "standard of care." How can I research this for a claim we are pursuing - I would like to hear both sides of the argument. Thanks. - 6 days ago
Did anyone else get the bad news from United Healthcare that Lyrica is going to a higher tier for prescription coverage? Mine will be $250 a month! I'm panicking! I really need that med. - 6 days ago
I have Spondylolysis and Spondylolysthesis. I'm headed to a rheumy tomorrow to dig further, since I have many symptoms of AS, like Uveitis and joint pain. I don't understand the correlation between AS and my two mechanical issues. Could AS be the cause? I've read and researched and am still confused as to a possible link between them. Did anyone get their AS dx via a similar route? Thanks. - 7 days ago
Anyone here on Orencia after failing the other tnf blockers (humira, enbrel, etc)? - 1 week ago
Anyone work in a hospital setting while being on a TNF blocker? I am just curious about the risk of various illness that can be inherited while having a weaker than normal immune system. Or is this not the case? - 1 week ago
Just got the phone call from the Encourage Foundation and I qualified for assistance for Enbrel and should receive it this week. Already set up my class to learn how to inject myself, even though I am pretty sure I know most of it. But super excited and just wanted to pass it along! Just wanted to spread some good news, I am super happy! Thanks everyone for all the support! - 1 week ago
Hi there, I've been on Humira bi weekly for the last few months and I had an injection yesterday. The injection site side of my stomach has swelled up noticeably so, it is itchy (as normal) and painful. The pain hurts more when I stand up and walk round. I have just put an ice pack on it now. I haven't had this problem before just a little swelling and itching. . Has anyone experienced this? - 1 week ago
Has anyone had the heels on feet go numb? Hurts so bad can not walk far?
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