- 2 days ago
Does anyone live in Omaha, NE that has PSA, and only taking NSAIDS? - 1 week ago
Has anyone tried cimzia? - 2 months ago
Anyone switch Humira dosage from 2x month to 3x (every 10 days)? Ive been on H. 3 months since switching fro Enbrel. Last few days before next shot are tough. Any experience w ramping up the H? - 2 months ago
""(Pasted from my inbox) Patient.co.uk is used by GPs and the NHS in the uk the ignorance over here is alarming"" More information relating to the HLA B*27 positive result (No Status) This has been referred to the Clinical Editor, however I'm sorry but the condition is really too rare for us to cover. Hilary, Clinical Content Manager Patient.co.uk Admin Admin, Patient.co.uk - 2 months ago
Any on here from ontario, canada that is recieving disability? - 3 months ago
Why is aol not loading today? - 3 months ago
I just had to post a thank you. I was amazed when I logged back on the day after posting my question and saw how many replies I had. It brings me to (happy) tears. As I'm sure many of you know it's so hard to find anyone to empathize with the struggle of living with AS. You are all wonderful, and honestly have given me renewed hope. Thank You? - 4 months ago
Just want to say when I lived in california, my daughters swimming pool did wonders for me but I live in wa. Its cold all the time and getting out of a tank of water made me stiff all over. They said they didn't think they could help me any more and dropped all appointments, nicely. I don't know if it helped me no change except my knees started to hurt. I felt that other people there needed their help more then I do? - 5 months ago
I am interested to find out if any of you struggle with Sjogren's Syndrome. My eyes are so dry, they're developing some additional problems, and I just can't seem to find any relief. I'm allergic to Restasis, so I was never able to use it long enough to get some results? - 5 months ago
Merry Christmas and Happy Holidays to my AS Community. What is everyone doing for the holidays? - 6 months ago
Has anyone had pneumonia since being on remicade? I've had a follow up xray and still have a spot on my lung now i have to have a c.t. Scan and possibly see a lung specialist. Anyone else had issues like this - 7 months ago
Saw my doc today they say now i have oesteopinia in my spine with T7 deforming and collapsing does anyone else have this? - 7 months ago
Has anyone been diagnosed with PUD Peptic Ulcer Disease. I was diagnosed with this a couple weeks ago due to overuse of my NSAIDS (Celebrex) I was told by my Rheumy to take one everyday now I cannot take them at all. At the same time I started Pilates and Yoga and I have to say I have not felt better in a long time! I truly believe everything happens for a reason? - 7 months ago
Has anyone been treated for Grave's disease as well? I had a 17 yr remission from AS but during that time I was diagnosed with Grave's & given radioactive iodine which destroyed my thyroid. After they finally found the right dosage of Synthroid, I was stable for 6 yrs. Now, since January, my required dosage has doubled but my AS is back in full force. With both being autoimmune diseases, I'm thinking there must be a connection. - 7 months ago
Support Group Meeting for Kansas City area is set! Saturday October 29th 9:00am Matt Ross Community Center 8101 Marty St. Overland Park, Kansas THere is carpooling avaiable for those on the Missouri side just give me a shout. This will also be available for the AS website? - 11 months ago
To Jessica Farrell... Funny I have AS and my name is Farrell too, maybe related lol Joanne? - 1 year ago
Does anyone have experience with AS and Tarsal Coalition? My son (15) has a lot of symptoms of AS, and has jad 2 ankles surguries for tarsal coalition. Now the bones are fusing again. - 1 year ago
How do i get what i wrote about as into the computer? - 1 year ago
Good Morning my Friends, Wanted to say Happy Mothers Day to my AS friends here! Also, a note - I joined this site 5 months ago - the member count was less than 600. As of today we are 889 strong. Thanks for being such a great support system and always being "here" when we all need support? - 1 year ago
Long tags for test in question? - 1 year ago
Enjoy the new Menu Plan & Recipe Sharing Section I've set up for those attempting Gluten & Starch Free Diets! www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm - bottom of the page? - 1 year ago
For those of you on or considering a Gluten Free or Starch Free Diet, print out your FREE Restricted Food Cards at www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm at the bottom of the page? - 1 year ago
Many " researchers" believe that an injury causing intestine leakage to a person that carries " gene markers" associated with AS, will get it. It would be nice to know for sure that there is/was a cause/affect that triggered AS. Who can we tell? - 1 year ago
Knuckling of vertebrae during sleeping and changing sides reduced my a.s. Pain ...what is the reason? - 1 year ago
This article has some good advice. docs.google.com/viewer?a=v&pid=explorer&chrome=true&srcid=0B Wanna read it?
- 3 hours ago
Can an auto accident and it's stress exacerbate my ankylosing symptoms even if I was not seriously injured? - 18 hours ago
Just curious, since allergies are an immunological response, how many of us with AS suffer from an environmental or a food allergy (a true allergy rather than a sensitivity)? - 23 hours ago
Hi everyone, random question but has anyone experienced severe toothache since being on biologics (Enbrel)? I've only been on Enbrel for 3 weeks but since starting I've had the worst toothache every day. I wonder if it's connected or just something completely seperate? Thoughts are welcome! - 1 day ago
I have Crohn's and A.S. But have yet to start taking Humira. I am suppose to start it in the next few weeks. I have been on extremely strong narcotics (dilaudid and others) for the pain associated with both diseases. Has anyone that has been on Humira been able to either stop or lower their doses of pain meds? When I am taking high doses of prednisone I don't have to use as much pain medication but once I am off I fall right back into the same pain routine. - 1 day ago
What kind of support does everyone have? I am 60 and live alone. I do have a 30 year old son who is wonderful about helping out and he came over today to help plant the garden. I try not to rely on him too much but there are just some things I can't do anymore. I am a very independent person so it really drives me crazy. I want to retire out of the area which means moving away from my only support. How does everyone else cope? - 1 day ago
Does anyone else have these whisker like growth of bones on their pelvic/hips/spine or other joints? Does this have anything to do with AS? - 1 day ago
I seem to have different types of pain depending on swelling and was wondering if this is common. I have what I call dry, bone pain where the bones of my spine and hips seem to grind against each other and sharp cracking for a few days and then I get a fluidlike pain and when I lie down on my stomach it feels like the spine is actually moving. I have sharp pain in my ankles and wrists and swelling and stiffness in my elbows, hips and now shoulders and knees. Does anyone else deal with this? - 1 day ago
Sorry to board crash, since I don't have an AS dx...I feel bad coming to ask for advice. I had my last visit with my rheumy which was a total bust as all he did was give me a trigger point injection in my back, didn't even adress my other symptoms or give me any thoughts on what is going on (I'm moving so I plan on getting another doctor soon). . In any event, my MRI was clear with the exception of having fluid in my coccyx. Does anyone know what that means? - 2 days ago
My Partner has AS and has been on Humira for last 2 years and has been pain free. However past couple of months he has had an onset of chest, shoulder and upper back pain, and but blood tests have come back with no inflammatory markers, ECG normal. Does anyone have the same symptoms? - 2 days ago
I have had pain all over since December. Followed by a diagnosis of Anterior Uveitis in Feb. My Dr ran all kinds of tests. The results came back with a positive ANA, very elevated Epstain Barr levels, low calcium and low albumin, HLA-B27 positive. I cannot begin to type all the weird symptoms I have had but the pain and fatigue are what gets the best of me. After my last "flare", I was sore to touch on my whole upper body. The Dr got a Rheumatologist to see me right away?
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